GlobalSkin’s Director of Programs, Tammi Shipowick, attended the International Rare Diseases Research Consortium (IRDiRC) Assembly and Scientific Committees Meeting held March 18–19 in Sofia, Bulgaria. The meeting brought together funders, researchers, industry, and patient organizations to advance the rare disease research agenda and improve outcomes for people living with rare diseases.
As Vice-Chair of the Patient Advocates Constituent Committee (PACC), Tammi engaged in discussions with fellow members on the Committee’s goals and priorities. The two-day meeting also featured key conversations on the role of National Mirror Groups, the value of patient partnerships in research and regulatory processes, and the ethical considerations of AI-driven tools in rare disease research. |