AltogetherEczema is a new global patient community

Dedicated to what matters most to people living with or caring for someone with eczema or atopic dermatitis.

Learn more

Together we are stronger!

Hear what the community is saying and join the conversation

Share your story

Join this global community

Use your voice to make a difference

Get involved

Are you a member or leader of an eczema patient association?

Empower the voice of your organization

For patient associations

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The International Alliance of Dermatology Patient Organizations (IADPO), a not-for-profit organization, has created this online community. Learn more about IADPO (also know as GlobalSkin).
About us

AltogetherEczema is a place to:

Share

experiences of life with eczema or atopic dermatitis, as well as aspirations for the future

Explore

issues and stories that matter most to the community

Act

for changes that will improve the lives of those living with eczema and atopic dermatitis
Over time, the AltogetherEczema community voices will be harnessed to campaign for new polices that ensure a better life for those living with eczema or atopic dermatitis.

What is eczema & atopic dermatitis?

Eczema is an umbrella term for a group of autoimmune diseases that affect the skin. The most common and chronic form of eczema, also known as atopic dermatitis, typically causes patches of dry, itchy skin that may worsen and erupt into a rash when scratched.

Life with eczema and atopic dermatitis is not easy, and can feel very limited. People not only face significant physical symptoms, but often endure a significant negative impact on their emotional wellbeing, from an inability to sleep to social exclusion and depression or anxiety.

We believe that gathering a better understanding of what matters most – both in terms of the issues faced and future aspirations – can lead to action that promotes better lives for those with eczema and atopic dermatitis.

 

 

 

What is it really like living with eczema or atopic dermatitis?

Whether you care for someone with eczema or atopic dermatitis, or live with it yourself, your perspective is key to helping us spark an international conversation focused on living with this disease. We are working to gather the issues that matter to people living with eczema and atopic dermatitis, and will use the combined information to bring about positive change.

Please take 5 minutes and complete our quick survey. You can then compare your answers with those of the rest of the community!

Your responses will be pooled to protect your privacy; all data will be under the care of the International Alliance of Dermatology Patient Organizations. The aggregated results will be shown visually on the AltogetherEczema website. You will be able to compare your answers with the results of others who have answered the survey and filter by demographic. You are not required to disclose your name in order to take the survey and other participants will not be able to see your identity or individual answers. No information will be tracked back to the individual.